The Whitworths of Arizona, bringing science to you in everyday language.

Thursday, June 2, 2011

Welcome to our blog. We're new at this but we hope to share some of the information we've learned in our journey with Lewy body dementia. Just a little history first:
Jim became aware of this disorder in 1999, when his first wife, Anique, was diagnosed with Alzheimer's. Jim researched it on the internet and found that her symptoms better fit something called "Lewy body disease." In 2003, he and some other LBD caregivers started the Lewy Body Dementia Association (lbda.org). I didn't join the bandwagon until 2005, when she married Jim. A retired nurse, educator, writer and artist hopeful, I added another dimension to Jim's mission and we started doing programs about LBD, and eventually wrote a book, Riding a Rollercoaser with Lewy Body Dementia. And in 2010, we wrote A Caregiver's Guide to Lewy Body Dementia, published by Demos Medical Publishing. Now we have perfected a system whereby care facilities can easily do the programs we have been doing for years. You can find out about our LBD Training Kit at lbdtools.com.

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