The Whitworths of Arizona, bringing science to you in everyday language.

Tuesday, December 31, 2019

How to Plan and Pay for Your Long-Term Care

This week's blog is by guest writer, Hazel Bridges of AgingWellness.com, a website that "aims to provide health and wellness resources for aging seniors." Do check her website out. It is well worth a review. As usual, I've added a few comments in italics.

No one wants to think about a time in their life when they could lose their independence. However, when you or a loved one has dementia, anticipating and planning for long-term care needs will help you save money and stress in the future. As with many things in life, it's better to be safe than sorry. Plus, having a plan in place will give you immediate peace of mind that you or your loved one will always be well cared for. Here are some practical tips to get you started.

Assessing Your Risk of Requiring Long-Term Care

Is There Illness in Your Family?  Knowing your family history of disease can reveal which illnesses you should be prepared for and what preventative measures you can take now. If you have close relatives with diabetes, heart disease, high blood pressure, osteoporosis, or cancer, your chances of winding up with these issues may be higher than normal. Everyday Health recommends obtaining your family medical history by talking to family members, looking at family documents, and reviewing death certificates. If these diseases run in the family, they can cooccur with cognitive decline, making independent living even more of a challenge.

What Does Your Lifestyle Look Like? The lifestyle choices you make right now will affect your health as you age. One study even found that lifestyle has a greater effect on life expectancy than genetics. For example, people who don’t smoke, keep their cholesterol low, and maintain their fitness in their 50s are more likely to see their 90th birthday. When you move into an assisted living facility, your dementia care experts can help you maintain positive habits that will increase quality of life.

Your Options for Funding Long-Term Care

Long-Term Care Insurance. Traditional long-term care insurance can give you the customizability to choose your amount of coverage and how long it lasts. However, you will never see this money if you don’t end up needing care. On the other hand, many insurance companies offer hybrid life insurance and long-term care policies. This type of policy will help you pay for your long-term care if you need it and will pay out a death benefit to your beneficiary if you don’t. (LTC insurance is something you need to get years before you need it. I did, but now the cost of it has increased so much that I had to decrease its benefits to be able to keep it. Do check out the company's options for things like rate increases.)

Medicare. Medicare helps pay for medical costs for people 65 and over, but it does not cover the majority of custodial long-term care expenses. Many people choose to supplement this coverage with a Medicare Advantage plan. Plans vary state to state, but MA plans generally cover extra expenses like vision, dental, and prescriptions. (While coverage of these extra expenses is very helpful, MA plans usually still do not cover custodial long-term care.)

Your Home’s Equity. A reverse mortgage can help seniors pay for long-term care expenses by using their home’s equity. You can either receive a lump sum of cash immediately or receive monthly payments throughout retirement. Importantly, you still have the right to remain in your house even if you exhaust all of the equity in your home. Most often, the lender recoups their money by selling the property after the last spouse passes away or moves. Keep in mind, a reverse mortgage means that your estate will decrease over time, so you’ll want to think carefully before jumping into this decision. (Also be sure to check out all the ramification and use a reputable company for your reverse mortgage. (While this can be a welcome answer to a difficult problem, there have been issues when an uninformed home owner was encouraged to obtain a less than attractive reverse mortgage. Consider getting a second opinion before making the final decision. You need to know exactly what you are getting into.) 

Another way to pay for long-term care is to sell your home outright and downsize into a smaller space. This can be a viable option, but if you’re considering it, it’s a good idea to get an estimate on your home’s value.

Health Savings Account. A Health Savings Account (HSA) is a good option for people who are covered by a high-deductible health plan. You can make tax-free withdrawals at any time when you use the money to cover medical expenses. You can also use the money for non-medical expenses but you will have to pay income tax on it.

Talking about your plans for long-term care may be an uncomfortable conversation to have with your loved ones, but it's an extremely important one. As many as 52 percent of people will need long-term care at some point in their future. Instead of worrying about what the future holds, be well-prepared so you can you can focus on your health right now! (Hazel is so right! Uncomfortable or not, talking about long-term care and planning for it is super important. Also if you and your loved one talk about this early on, while they can feel as though they have a role in the planning, it will go easier when the time comes to put it into effect--even if they don't remember the conversation.)

References:

For more information about Lewy body disorders, read our books:
A Caregivers’ Guide to Lewy Body Dementia
Managing Cognitive Issues in Parkinson's and Lewy Body Dementia
Responsive Dementia Care: Fewer Behaviors Fewer Drugs
Lewy Body Dementia: A Manual for Staff

Helen and James Whitworth are not doctors, lawyers or social workers. As informed caregivers, they share the information here for educational purposes only. It should never be used instead of a professional's advice.

Wednesday, December 25, 2019

Merry Christmas

We wish you a happy, peaceful and joyful holiday season.

Helen and Jim Whitworth

For more information about Lewy body disorders, read our books:
A Caregivers’ Guide to Lewy Body Dementia
Managing Cognitive Issues in Parkinson's and Lewy Body Dementia
Responsive Dementia Care: Fewer Behaviors Fewer Drugs
Lewy Body Dementia Manual for Staff

Helen and James Whitworth are not doctors, lawyers or social workers. As informed caregivers, they share the information here for educational purposes only. It should never be used instead of a professional's advice.

Friday, December 20, 2019

Keeping the Joy

Last week's blog was about inviting peace into your life. This week is about keeping it and adding joy.
  • Think positive. This often takes a conscious choice because our natural warning system kicks in quickly with the negatives. Pay attention to these--they will keep coming back if you don't! But then, but you canusually choose to think positively instead.
  • Be grateful. Wake up and go to sleep counting your blessings. This causes your body to secrete those wonderful feel good hormones and give you a healthy high. No matter how bad things are, you can likely find something to be grateful for. And, by the way, you don't have to have anything specific! Your body responds to just "feeling grateful" just as it does to feeling grateful about a specific thing.
  • Reframe. Don't just be grateful for the obvious things. Reframe your tragedies into blessings as well. For example, when I lost my kneecap in an auto accident, I chose to see my need to exercise to keep the knee moving as something I, a fairly sedentary person, probably wouldn't have done otherwise--and a blessing.
  • Forgive. Holding only resentments hurts only you. Blaming helps you avoid painful but necessary choices. (Think: What is it about ME that makes me resent that person?)
  • Communicate. Ask, share, don't try to read minds or keep secrets. The more open you are the freer, and less stressful you will feel. (This does not mean that you insist that a loved one share your reality when theirs is different!)
  • Accept. Accepting does not mean you have to like the changes that dementia brings. But it does make it possible to move on. Accept those changes and accept your loved one's reality when it is different from yours.
  • Be generous. Giving, even if it nothing more than a compliment, feels as good to the giver as it does to the recipient. Give all you can...money, talent, time, words and touch. It all counts!
For more information about Lewy body disorders, read our books:
A Caregivers’ Guide to Lewy Body Dementia
Managing Cognitive Issues in Parkinson's and Lewy Body Dementia
Responsive Dementia Care: Fewer Behaviors Fewer Drugs
Lewy Body Dementia Manual for Staff

Helen and James Whitworth are not doctors, lawyers or social workers. As informed caregivers, they share the information here for educational purposes only. It should never be used instead of a professional's advice.

Friday, December 13, 2019

Inviting Peace Into Your Life

Tis the season for peace...but any dementia care partner knows how stressful this time of the year can be. Here are some suggestions for keeping the peace in your life:
  • Take it easy. You have to do that anyway for your loved one, but slow your own life down all you can. The urge for speed adds adrenalin to your system--and causes you to feel stressed.
  • Keep it simple. Again, something you've likely learned to do for your loved one. But it works for you too. Sure you want to decorate, but only do a minimal amount. Sure, you want to bake that special pie or casserole, but don't plan a whole fancy meal. Leave that to someone else...let them take over.
  • Use increments. Don't do it all today. Spread your work out and plan to do a little each day, or even each hour. Take time to rest and relax in between.
  • But do it. Yes, you want to take your time, but don't put off what needs to be done. Procrastination is a form of denial and denial is actually very stressful to maintain.
  • Be early. If you do go somewhere, make it a point to be a little early. The fear of being late adds those stressful hormones into your body.
  • Breathe. When you feel stressed, just take a minute or two to breathe. This gives your brain some extra fuel to deal with those stress hormones and give you a moment to relax and consciously let go of the pressure.
Merry Christmas! Happy Holidays.

For more information about Lewy body disorders, read our books:
A Caregivers’ Guide to Lewy Body Dementia
Managing Cognitive Issues in Parkinson's and Lewy Body Dementia
Responsive Dementia Care: Fewer Behaviors Fewer Drugs
Lewy Body Dementia Manual for Staff

Helen and James Whitworth are not doctors, lawyers or social workers. As informed caregivers, they share the information here for educational purposes only. It should never be used instead of a professional's advice.

Wednesday, December 11, 2019

Lewy Body Dementia: A Manual for Staff

We hope you went to Amazon and downloaded your free digital copy of our book, Responsive Dementia Care: Fewer Behaviors, Fewer Drugs. We will be offering more of our ebooks for free as the year goes on. In fact, we have finished a "new" book, just in time for Christmas. It will likely be the next one we offer. Keep an eye out for in about February. In the meantime, it out there now, just in time for a gift for your helpers. This book is a major upgrade of our old Riding a Roller Coaster with Lewy Body Dementia. This was the very first book we wrote about LBD, and it was published the summer of 2009. A lot has happened since then and we've included it in our new book, Lewy Body Dementia: A Manual for Staff. Some of the new info:
  • An expanded view of how dementia affects the emotions, thinking and behavior.
  • The new 2017 Dementia with Lewy Bodies criteria, along with explanations and a discussion of brain imaging and a comparison to the older but still in use Parkinson's Disease Dementia criteria.
  • Our very successful style of responding to your loved one's delusions with empathy and acceptance. This is of course, a much condensed version of what is in our Responsive Dementia Care: Fewer Behaviors Fewer Drugs book.
  • Information about symptoms now recognized as being Lewy-related, such as apathy and a whole section on mood disorders.
  • Information about alternative therapy options and techniques.
  • New information about antipsychotics, with stronger warning by dementia experts to use non-drug remedies before antipsychotics with "all dementias" not just LBD. But also, a newer antipsychotic that may work better with LBD and the removal of Seroquel from the Beers Criteria of drugs for seniors to avoid.
  • The many advantages of medical marijuana and CBD with dementia.
  • Information about the LBDA's Research Centers of Excellence, which improve community knowledgeable LBD treatment and care and provide support for the care partner.
  • A huge Resources section, with information about a variety of subjects like alternative therapy, brain donations, caregiver information and support, drugs, home safety, treatment, residential placement and more.
  • A huge Glossary, with words in this manual and others that you might come into contact with later.
This book is a great gift for your care staff, either at home or in a facility. When you buy it bundled with our other books, you get a bargain. Click here to see the offers.

For more information about Lewy body disorders, read our books:
A Caregivers’ Guide to Lewy Body Dementia
Managing Cognitive Issues in Parkinson's and Lewy Body Dementia
Responsive Dementia Care: Fewer Behaviors Fewer Drugs

Helen and James Whitworth are not doctors, lawyers or social workers. As informed caregivers, they share the information here for educational purposes only. It should never be used instead of a professional's advice.

Wednesday, December 4, 2019

Get Your Free E-Book!

We are doing it again! We are giving away digital copies of Responsive Dementia Care: Fewer Behaviors Fewer Drugs. The promotion starts Thursday at 12:01 am December 5 and ends on Monday, December 9 at noon.Just go to Amazon and "buy" the book for free anytime during the promotion. All we ask is that you read it and write a review. (BTW, in this time of phishing and scams, know that Amazon does not give us your name when you get this book. It really is free! We give it away so more people will read it, like it, tell others about it and perhaps even buy a paperback copy they can mark up.)

Pat Snyder, author of Treasures in the Darkness and a LBDA Lewy Buddy calls this her favorite of the Whitworth books and says it addresses the most frustrating part of LBD symptoms in a clear-cut practical way. Rosemary Dawson, the administrator of Caring Spouses and long term LBD advocate, says that this book provides care partners with the knowledge to implement non-drug approaches in a comprehensive yet clear way.

To repeat: From 12/5/2019 to noon on 12/9, you can go to Amazon and "buy" Responsive Dementia Care: Fewer Behaviors Fewer Drugs for free. Please do read the book and give us an Amazon review!

BTW, while you are on Amazon, check out our newest book, Lewy Body Dementia Manual for Staff. This is an up-to-date revision of our old Riding a Roller Coaster with Lewy Body Dementia. This book is a great gift for your caregiver or helper or for the care facility where your loved one lives. Click here to get it for even less when bundled with our other books.

Finally, while we are in sales mode, don't forget that we self publish most of our books. This means we can sell them in bulk for much less than full price. We can also customize them for facilities and groups. If you would be interested in this, see our 11/22 blog.

For more information about Lewy body disorders, read our books:
A Caregivers’ Guide to Lewy Body Dementia
Managing Cognitive Issues in Parkinson's and Lewy Body Dementia
Responsive Dementia Care: Fewer Behaviors Fewer Drugs

Helen and James Whitworth are not doctors, lawyers or social workers. As informed caregivers, they share the information here for educational purposes only. It should never be used instead of a professional's advice.