- Find a diagnosing and treating doctor who respects you as a part of the treatment team.
- Avoid emergency rooms and hospitals because the staff all too often does not know how to treat our loved ones in a way that supports them instead of damages them.
- Of all dementias, LBD is the most responsive to treatment--as long as it is the right treatment.
For more information about Lewy body disorders, read our books:
A Caregivers’ Guide to Lewy Body Dementia
Managing Cognitive Issues in Parkinson's and Lewy Body Dementia
Responsive Dementia Care: Fewer Behaviors Fewer Drugs
Lewy Body Dementia: A Manual for Staff
Helen and James Whitworth are not doctors, lawyers or social workers. As informed caregivers, they share the information here for educational purposes only. It should never be used instead of a professional's advice.