The Whitworths of Arizona, bringing science to you in everyday language.
Showing posts with label resources. Show all posts
Showing posts with label resources. Show all posts

Monday, November 16, 2020

Area Agency on Aging: Your Go-to for Resources

We talk a lot about how caregiving can be tiring and overwhelming. But it can also be expensive. We recently received a flier warning us that the Arizona state home improvement grant for caregivers ends after 2020. This reminded me that, with life in even a good care facility so isolating during this difficult time, many of you are likely looking for ways to keep your loved one home. 

If you don’t live in Arizona, you can check with your local Area Agency on Aging to see if something similar is available in your state. Also check to see if there are any Covid-related funds for caregivers. In fact, make your local Area Agency on Aging your go-to resource center for senior care. Visit the national Area Agency on Aging (AAA) website to find out where to go in your community and for lots of other valuable information. 

 The AAA article, Free and Discounted Services for Seniors and Their Caregivers is a great resource all by itself, offering sources and a small amount of information for each service. Do go to the article, but for now, here are many of the sources: 
  • Benefit Counseling.This what I mentioned earlier. The AAA is your starting point whenever you want to get answers about benefits for seniors. Call your local office or  visit  BenefitsCheckUp.org. to search for local, state and federal benefit programs.
  • Adult Day Care: Get lists of local centers at your local AAA or go online and use their Adult Day Care Directory. When inquiring about Day Care services, provide as much information about your ability to pay and your loved one’s capabilities as you can to get the best match for your situation.
  • Medicaid-Covered Dental Care: Contact your state’s department of health or visit the American Dental Association’s Find-A-Dentist web site.
  • Free Dentures: Contact your state’s dental association and any nearby dental colleges. Also contact AAA to see if they have any other suggestions.
  • Pharmaceutical Assistance Programs: Go to State Pharmaceutical Assistance Programs to find out if you live in a state that offers help with Pharms and if so, what kind.
  •  Prescription Drug Discounts: Use the Medicine Assistance Tool to find discounts from pharm companies.
  • National Family Caregiver Support Program: The NFCSP provides funding to states for the support of informal caregivers.
  • Discounted Phone or Internet Services: Visit LifelineSupport.org to see if you qualify for support and if there are any participating companies in your area. Some companies such as Comcast and Cox ma offer their own as well.
  • Retail Store Discounts: Visit Retail Store Discounts to find out about stores that offer regular discounts to seniors. Also ask staff at your regular store about extra discounts.
  •  Free Phone for Hearing Impaired Individuals:  CaptionCall provides free captioned telephones to those with hearing loss. For iPhone and iPad owners, there is also a free app.
  • Supplemental Nutritional Assistance: Managed by states. visit the USDA SNAP website for a list of national and state websites.
  • Other Free Food Services: Check with local AAA about local food banks, meal programs. Also visit FeedingAmerica.org.
  • Free Hearing Aids: Local Lions Club. Contact manufacturers about clinical trials on new aids.
  • Free Legal Help: Legal Services Corporation, AAA, local law schools, local and state bar associations, local senior centers. Veterans: Google legal help for veterans for a list of related websites.
  •  Medical Alert Systems: AARP members, veterans, and seniors with certain insurance carriers may be able to enjoy discounts on medical alert systems from certain providers. Some states may also have grants. Do read the AAA article before choosing a system.
  • Discounted Mobility Aids: Look for used items in thrift stores. Some non-profit organizations have them to lend. Also ask hospitals and nursing homes about used equipment. Ask your local AAA about local sources.
  • Low Income Home Energy Assistance Program: The LIHEAP provides energy bill assistance to low-income owners and renters. The Weatherization Assistance Program (WAP) can help with installation or repair of HVAC systems, and seal doors and windows. 
  • Long-Term Care Ombudsman Services: Contact your state ombudsman if you feel your loved one is being neglected, abused or exploited in a LTC facility. Contact information should be prominently displayed in the facility or you can find it on the National Consumer Voice for Quality Long-Term Care website.
  • Residential Repair Services: Check to see if your local AAA runs a repair service for minor upgrades and aging-in-place adaptions. You pay for supplies but labor is volunteered. Also ask about state grants like the one mentioned at the first of this blog.

Next week is Thanksgiving and we are taking the week off. Everyone enjoy a safe and happy holiday. The next blog, on December 4th, will be about more web resources for care partners.

For more information about Lewy body disorders, read our books:
A Caregivers’ Guide to Lewy Body Dementia
Managing Cognitive Issues in Parkinson's and Lewy Body Dementia
Responsive Dementia Care: Fewer Behaviors Fewer Drugs
Lewy Body Dementia: A Manual for Staff

Helen and James Whitworth are not doctors, lawyers or social workers. As informed caregivers, they share the information here for educational purposes only. It should never be used instead of a professional's advice.

Friday, January 31, 2020

Care Partners Pt. 4: Resources

This month's blogs have been about care partnering. We've made a point of saying that this is a daunting job and you will likely need help before it is done. And so how do you go about getting that. Well, last week's blog made some general suggestions but this week is more specific by highlighting just a a few of the many resources noted in our books. For a longer list, check out our books.

National Association of Area Agencies on Aging: Because this group has local offices in most communities and therefore can provide you with lists of local resources, it is at the top of this list and the one you should check out even if you don't check out any of the others. your list of resources. 202.872.8888 or email info@n4a.org.

LBDA.org: This is the most thorough website focuses specifically on Lewy body dementia on the internet. You can find information about LBD, support groups and a medical glossary here as well as a myriad of other things.

Family Caregiver Alliance:  This is Jim's favorite, after the LBDA.org and our own, of course. It is one of the best caregiver sources on the internet. Find databases for a multitude of local resources by state. 800.445.8106.

Assist Guide Information Services.  Excellent site with checklists, databases and information on the disease, drugs, home care and safety, legal and financial issues, care placement and other caregiver support.

AARP Health Tools. Especially helpful with medications, these tools not only include drug symptoms and interaction checkers and other drug related tools, but other information as well such as cost caculators and Medicare information.

USA.gov for Caregivers Resources. Directory to state and federal websites and agencies offering services to caregivers. One listed website is benefits.gov, useful for researching government help. 844.USA.GOV1.

Hilarity for Charity. An organization that raises money for grants for dementia caregiver assistance. Use their online email contact form to apply for a grant for financial help for in-home caregiver costs.

Rebuilding Together. Home caregiving often requires remodeling bathrooms. This nonprofit may be able to help you with low or no cost home modifications. 120 local USA offices. 800.473.4229

The National Academy of Elder Law Attorneys, Inc. (NAELA) Click on “Find a Lawyer” for elder care lawyers by city/state, zip or name. Care partners highly recommend that you use an elder lawyer to prepare your legal papers. You should be able to use this site to find one in your area.

Guide to Long Term Care for Veterans. Information about home, community based and residential long term care options. If your loved one is a veteran, don't miss out on benefits by neglecting to contact the VA.

National Long-Term Ombudsman Resource Center.This organization not helps you find an appropriate local long term care facility. Then it provides advocacy if you have a dispute with them.

As promised, this is only a short list of the resources available to care partners. You can find more in our books.